He Knows,…

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Ever faced a difficult conversation?

Life’s tough at times, and NOBODY gets out of life. High or low everyone, sooner or later is going to face – challenges.

How do you face those challenges is the real question. For us, in regard to Apraxia and Autism we’ve learned it is best to be utterly delighted with what our little guy CAN do, then devastated over what he can’t do, yet.

Ah yet,…the most delightful little word in the world,…so full of promise!

We’re also so grateful that when challenges are properly weighed, there are more things our little guy can do,…then can’t.

Speech is still a biggie.

Communication challenges are not a joke. It takes serious therapy and concentrated effort to get motor processing processes processing. Apraxia, you must understand is a motor processing disorder. It’s also very rare among the general population, but not quite so rare among individuals on the spectrum. Apraxia, simply put, is the inability to be able to say whatever you want to say when you want to say it.

Imagine how frustrating,…one day you can say a certain word or phrase,…the next day, or even sometimes the next moment,…you can’t.

Not that our little guy let’s Apraxia slow him down,…much. No one is ever in doubt when he puts forth effort to communicate,…in his own matchless style. Trust me the only  person on the planet not concerned with his Apraxia diagnosis,.. is our son. To him, if there is a communication disconnect,…it is not coming from his end,…and he’ll work with you, in a very there-there manner,…until YOU understand.

But you know we’re never had the Apraxia conversation. It hasn’t seemed necessary,…as stated our little guy could seemingly care less,…as in one way or the other he gets his message across. It’s a unique form of conversation,…quite brilliant if one thinks of it, as our son uses whatever means he can to communicate,…be it script, sign language, repetition, prompting us, or even attempts at telepathy when he was very little and would put his forehead to ours as if to seep his thoughts through. Sign language has helped greatly, and of course the past six years of weekly speech therapy.

Six years?

Yep, every week with only a few weeks off for holidays and such, but even then we’re working on speech at home.

Last week was the first time our little guy questioned his speech appointment, and it wasn’t so much the appointment, but exactly what did his speech pathologist do.

“She helps you speak easier,” I answered,…and then I asked the question, I had never asked, “Is it hard for you to speak,…or easy.”

That little head tip to the side for a moment, the little brow furrowed, and then he looked up, and said, “Hard.”

Poignant moment for like two seconds, as I inwardly gasped, “He knows!” because our little guy totally shrugged it off as non-relevant. It’s hard for him to speak, so what, he also has hazel eyes, both are a part of him, and as I.I. would say, “Next.”

Perhaps it is Autism that gives our little guy such self-acceptance,…or perhaps, more likely it’s his faith.
Oh yes,…eight year olds have faith,…amazing faith.

He knows,…he is loved.
He knows,…he is accepted.
He knows,…God doesn’t make mistakes.
He knows,…God helps him with his challenges.
He knows,…he is awesome,…and guess what our little guy thinks,…YOU are awesome, too.

Trust me for someone with a speech disability our little guy is a GREAT communicator. I certainly look upon the challenges in my life with a different perspective. Life’s messy, no one gets out of it without challenges,…some obvious, some not so obvious,…and those challenges and how we face them, and help others face theirs is the real question.

Our little guy knows that God will never leave nor forsake him,…he also somehow knows with his amazing little faith that 2 Corinthians 12:9 – holds true, today, tomorrow, and forever more.

“My grace is sufficient for you,
for my power is made perfect in weakness.” 

Monotony Of Love

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Been bored lately?
Or perhaps stuck at a repetitive task?

Have you ever priced educational materials?
Good night, but supplemental materials are through the roof expensive – $$$$ – especially when you are teaching a child who is a visual learner.

Of course, Mamas are seldom daunted by a needed task for their child,…even if it means clip and cut,…clip and cut,…clip and cut,…for hours.

Three guesses how I got the title for this week’s post!

Oh yeah, I was definitely thinking, “Little guy, but Mama loves you bunches, and bunches, and bunches,” as I worked on those phonic/grammar word cards. If you have ever cut a ream (that’s 500 sheets) of card stock paper into 2″x3″ rectangles,…then you know the task was a bit tedious.

But you know in the Love Chapter, 1st Corinthians 13, the very first attribute to love is patience.

“Love is patient.” 1 Corinthians 13:4

Have you ever thought about sunsets and sunrises? EVERY SINGLE DAY,…up comes the sun in glorious light,….and then at the end of the day,…down it goes in a glorious show without fail,…for what,…zillions of years now? Or tens of thousands? No one really knows, but it’s safe to say it’s been more sunrises and sunsets then we can count in a lifetime. And what about the water cycle? Hello,…it’s a continuous route to the ocean, and the second those water molecules hit the beach,…no vacation for them,…it’s right back to evaporation-city to form those clouds,…and drop right back down to the earth as rain, sleet, hail, or snow,…so there is a tiny variation from the monotony,…but no great odds they get to become crystalline snowflakes.

Speaking of snowflakes,…are you aware since the creation of the world,…there has NEVER been two snowflakes exactly the same? Shall we all say, “MIND BOGGLING!!!” or rather, “PRAISE THE LORD!!!” — as if the LORD doesn’t have anything else to do in the universe, but create absolutely, totally unique snowflakes every single time, day in, day out,…and it’s always snowing somewhere on this planet.

THAT’S PATIENCE! Or rather,…that’s love.

How loving patient is the LORD with us? How much does the LORD do for us,…day in, day out,…without us giving it a second thought?

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When my little guy and I use the phonic/grammar cards I’ve been constructing I am pretty sure he’s not going to give the work put into the task,…a second thought, or even a one thought for that matter,…and that’s okay, I am not expecting him to. I love him, he’s my child,…to help him learn,…clip and cut,…clip and cut,…clip and cut,…it but a small price to pay.

How much more does the LORD love us?

“Love is patient,…love is kind.” – 1 Corinthians 13: 4

Could I possibly be as patient with myself as the LORD is? Or as kind? Guess what? We’re not perfect,…but the LORD loves us anyway.

Day in,…day out,…day in,…day out,…whether we acknowledge the wonders of God’s greatness,…and patience,…and kindness,…or not. That wondrous snow,…it falls on everyone, folks,…as does the needed rain,…and those glorious sunrises and sunsets,…they are FREE for one and all,…like salvation.

For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life.” – John 3:16

 

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Talk about monotony! Giving up heaven for earth,…to live and breathe,…hunger and thirst,…become tired,…day in,…day out,…for thirty-three years,…knowing the entire time your destiny,…the WORLD’S destiny,…was destined for that hill on Calvary.

The things you think about when you are sitting at a work table,…clip and cut,…clip and cut,…clip and cut,…kinda puts everything into perspective.

Have you ever read 1st Corinthians 13,…from the LORD’S point of view?

Love is patient, love is kind. It does not envy, it does not boast, it is not proud.  It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs.  Love does not delight in evil but rejoices with the truth.  It always protects, always trusts, always hopes, always perseveres. Love never fails.” – 1 Corinthians 13:4-8

It’s raining somewhere in the world. Snowing,…too. I was asleep for the sunrise this morning, but I’ve no doubt it was spectacular,…the LORD never does anything halfway,…not a monotony task,…and certainly not love.

And now these three remain: faith, hope and love. But the greatest of these is love.” – 1 Corinthians 13:13

 

 

 

Back To Our Regularly Scheduled Program,…

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Here a pix of that gravity and air pressure science experiment!

Whew,…marketing duties are done for a while, it’s the toughest part of being an indie-author.  Writing a 130,000 word novel is a breeze, marketing said 130,000 word novel is the tough part, but I truly hope everyone who participated in the free promotion enjoys reading Becoming Portia – New Beginnings. 

Affinity For Food is slated for the next release,…it’s a short story collection,…a happy mishmash of food fiction where food is either the central plot or plays a pivotal role in the central plot such as Lasagna Legacy. It’s a fun way for an author to explore different genre’s from mystery to suspense to literary and slice of life.

Maxim’s Mermaid is a young adult novel, an allegory fantasy that explores grief and surviving loss from a young boy’s perspective,…and it will hopefully be released next year.

Becoming Portia – Present Reality is the second book in the Becoming Portia series, and it too will be out,…as quickly as this indie-author can get it completed.

Of course, Becoming Portia – New Beginnings is still available on Amazon,…ebook and paperback,…both reasonably priced for a very long novel, and if you can get this I actually cut 30,000 words from the original Becoming Portia story. Ouch! It was so hard to snip those great scenes, but publishing costs are a reality an indie-author has to face, and let’s get real,…no one is going to pay $25.00+ for an unknown author’s paperback, and all that ink and paper add up. Never fear for those scenes left on the cutting room floor, I’ll find a way to recycle them,…either into their own short stories,…or even a spin-off,…as I love writing spin-offs,…and the Becoming Portia series already has three spin off novels slated for future publication.

Oh,…let’s not forget my main task,…homeschooling my little guy,…along with all the therapies needed for Apraxia and Autism. It’s the work, I love most.

If you didn’t get in on this week’s free book promotion and are interested in future promotions or book releases the best odds are to follow this blog, or to find me social media. I post regularly on Twitter, Instagram, and Facebook.

No joke about marketing not being my forte. YOU are not a click or an email,…you’re a person,…and in the end how I treat people is more important than how many books I sell. By the worlds standards this is not a great marketing strategy, but I am well aware I am ultimately to be judged by a ‘different’ standard,…a holy standard,…to love one another and be kind to one another. 

The best FREE deal in the world is available to all,…there is never a promotion that ends, and unlike most marketing deals there is no gimmick,…only unconditional love.

For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life. For God did not send his Son into the world to condemn the world, but to save the world through him.”  – John 3:16-17

For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God – ” Ephesians 2:8

God bless!

 

Isn’t Free A Nice Price?

Okay,…we all know modern marketing is not my forte, but I am doing my best here to let folks know Becoming Portia – New Beginnings kindle ebook will be FREE,…November 26 – 27 2018. The paperback is also available for a reasonable price and would make a great gift for any reader interested in an inspirational tale with a diverse set of characters and plenty of unexpected twists and turns.

Thanks to those who took advantage of the free download yesterday,…hope you enjoy reading about Anne,…she’s something else!

Today is the last day for the free download,…price goes back to $5.99 for the ebook,…it’s a reasonable price for a very long novel. But hey,…today the ebook is free,…can’t beat free!

 

Becoming Portia – New Beginnings

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Thanks to Amazon’s KDP for allowing authors to offer this great deal to our readers.

Free is always a GREAT price!

Hi! Thanks for stopping by! Hope you had a great Thanksgiving and survived Black Friday Shopping. Chilly start to our Monday here,…a little cyber-shopping for us to get ahead on that Christmas list this Cyper-Monday, but mostly I’m gearing up for some phonics and an uber-cool science experiment with my little guy. Hint: we’re exploring gravity and air pressure,…something will be falling!

Later this week, between dental appointments and homeschooling, I’ll be posting a regular post, maybe about that science experiment, but for today I am giving a heads up on a great deal.

Free is always a great price, isn’t it?

 

BecomingPortiaNewBeginning copy

Becoming Portia – New Beginnings

Becoming Portia – New Beginnings kindle ebook will be FREE,…November 26 – 27 2018. The paperback is also available for a reasonable price and would make a great gift for any reader interested in an inspirational tale with a diverse set of characters and plenty of unexpected twists and turns.

Thanks to Amazon’s KDP for allowing authors to offer this great deal to our readers.

 

Free Is Always A Good Price

How was your Thanksgiving?

Our little guy’s pumpkins pie came out great! How about that for a library cooking lesson! While we’re eating pumpkin pie this weekend I wanted to give a heads up about Cyber-Monday sales.

BecomingPortiaNewBeginning copy

Becoming Portia – New Beginnings

Becoming Portia – New Beginnings kindle ebook will be FREE,…November 26 – 27 2018,…the paperback is also available for a reasonable price and would make a great gift for any reader interested in inspirational tales with a diverse set of characters and plenty of unexpected twists and turns.

Thanks to Amazon’s KDP for allowing authors to offer this great deal to our readers.

Autism Tales: He Didn’t Eat The Pie And I Didn’t Cry

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Pie making class, anyone?

Free Thanksgiving fun courtesy our local library. You bet we were in on that Family Pie Making class even though our little guy has not eaten a piece of pie in his life!

Okay so our youngest is only eight, but in the past eight years our little guy has not eaten holiday pie, or cake, and you can forget about Christmas cookies! Eh, eh,…it ain’t happening,…too many sensory issues to confront.

Donuts are our little guy’s delight. Plain, of course, let’s get real,…jelly filled donuts are too weird, jelly goes on toast, NOT inside donuts, and frosted donuts tick off every sensory issue, too sweet, too sticky and gooey, and too illogical. Hello, frosting and sprinkles are for birthday cake photo props, as our little guy has never eaten birthday cake, either. Oh he tries, our little guy is the bravest kid in the world,…he will try to bring that laden fork to mouth,…but he just can’t, yet, sensory, sensory, sensory road blocks are just not overcomeable at the moment.  

Don’t giggle, and don’t even dare to sneer,…YOU have sensory issues, too. Think of that one food,…you jussssst can’t bring yourself to eat,…and then magnify that feeling by a factor of 1000,…and you’re kinda close to how hard sensory issues are for those on the Autism Spectrum.

Six years ago when we were dropped into the Rabbit Hole, think Alice and Wonderland, of Apraxia and Autism,…holidays were already beginning to be confusing. Hello, it’s one thing to have a picky eater on your hands, but when any kid shuns Christmas cookies, hot chocolate,…pecan pie, pumpkin pie, and any type CANDY,…something is up. Or down,…like our spirits.

Thanksgiving is so traditional. It’s all about family and sharing a traditional meal, but our little guy couldn’t speak and seemly lived in his own universe where traditions and holidays, and family didn’t matter. We were just waking up to the fact our little guy experiences the world in a different way and he makes sure YOU do, too. That includes holidays.

Yeah,..it was a huge,…whoa factor to realize our holidays were never going to be the same. Sob city. You bet I bawled my eyes out,…wouldn’t you? But tears dry, sniffles ease up, and adults, adult, which is soooo much easier to do with faith in the LORD, because God doesn’t make mistakes. Would we rather our child not have challenges, ah yeah,…of course, but as people of faith we trust the LORD’s direction even when it takes us down very untraditional type roads.

It also helps to put holidays in the proper perspective.

Perhaps you already know the word: holiday is derived from Old English: Holy Day,…a day set aside for devotion,…like Thanksgiving. Hello, but who are we giving all that thanks to? Christmas,…celebrating the birth of Christ, Easter is not about the Easter Bunny, about the death and resurrection of our Lord, Christ Jesus,…

Therapy helps, too.

Happily I can say our little guy got over his turkey and dressing aversion,..only took about five years. Not even Autism could conquer my mother-in-laws fabulous chicken and dressing, which our little guy consumes with surgical precision. Trust me, we’ve rarely ever had to wipe our little guy’s mouth,…smears do not happen in his world! There is one, and only one cake in the world our little guy will eat, again with surgical precision, and we happily procure that sensory-proof carrot cake from a local barbecue joint. Hold the cranberry sauce, and any and all pies,…but Thanksgiving is not about the food,…it’s about family and friends, and unconditional love,…not ours, but the LORD’s.

“For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life.” – John 3:16

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But back to that pie making class.

Why in the world would I take my child with sensory issues to a class that is guaranteed confront one with sensory shuddering gooeyness?

The answer is so simple: “It’s not about the pie.”

The entire evening was about Thanksgiving,…spending time with family and friends. New experiences are broadening and our little guy learned you can have fun making something for others.

Look at that little champ! Please notice the spotless table,…not a smudge. Wish the giggles could translate upon a page – his and mine. We had fun following that recipe, with precision and dispatch. Team Isaac and Mommy finished first!

“We won!” Isaac cried with fist bumps and high fives, and I didn’t have the heart to tell him it wasn’t a contest.

Actually our little guy was a right, as always,…amazing how this kid always seems to nail the most important things. The pie, wasn’t the most important, spending time with mommy and his library friends, was. Take that Autism, we won!

Seeing that our local library doesn’t have a bank of ovens we had to bring our prepared pie filling home to cook,…this morning. Thank you to our librarians who were thoughtful enough to provide already baked pumpkin pie and whipped cream for us to feast upon last night. Of course our little guy didn’t eat the library’s pumpkin pie, although he did try a taste, “Mmmmm that’s delicious,” said Isaac, which is very polite code, “I am not eating that, thank you very much.”

No doubt the second our little guy wakes up,...you bet I write as much as I can in the mornings while he snoozes, he’ll want to put our class pie into the oven. Science and all, the heat from inside the stove will cause evaporation and chemical reaction from the starch and protein molecules,…thus creating,…voila a pumpkin pie! Cool!

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Cheesy photo opp pose with that pie filling held not too close,…but it was a great evening, we left happy and proud with new memories and new traditions,…and of course pumpkin pie!

The gift of Autism is that it break down life into its most elemental elements:

I love you.
You love me.
What else is really important?

From our family to yours Happy Thanksgiving!

God bless!