Ever faced a difficult conversation?
Life’s tough at times, and NOBODY gets out of life. High or low everyone, sooner or later is going to face – challenges.
How do you face those challenges is the real question. For us, in regard to Apraxia and Autism we’ve learned it is best to be utterly delighted with what our little guy CAN do, then devastated over what he can’t do, yet.
Ah yet,…the most delightful little word in the world,…so full of promise!
We’re also so grateful that when challenges are properly weighed, there are more things our little guy can do,…then can’t.
Speech is still a biggie.
Communication challenges are not a joke. It takes serious therapy and concentrated effort to get motor processing processes processing. Apraxia, you must understand is a motor processing disorder. It’s also very rare among the general population, but not quite so rare among individuals on the spectrum. Apraxia, simply put, is the inability to be able to say whatever you want to say when you want to say it.
Imagine how frustrating,…one day you can say a certain word or phrase,…the next day, or even sometimes the next moment,…you can’t.
Not that our little guy let’s Apraxia slow him down,…much. No one is ever in doubt when he puts forth effort to communicate,…in his own matchless style. Trust me the only person on the planet not concerned with his Apraxia diagnosis,.. is our son. To him, if there is a communication disconnect,…it is not coming from his end,…and he’ll work with you, in a very there-there manner,…until YOU understand.
But you know we’re never had the Apraxia conversation. It hasn’t seemed necessary,…as stated our little guy could seemingly care less,…as in one way or the other he gets his message across. It’s a unique form of conversation,…quite brilliant if one thinks of it, as our son uses whatever means he can to communicate,…be it script, sign language, repetition, prompting us, or even attempts at telepathy when he was very little and would put his forehead to ours as if to seep his thoughts through. Sign language has helped greatly, and of course the past six years of weekly speech therapy.
Yep, every week with only a few weeks off for holidays and such, but even then we’re working on speech at home.
Last week was the first time our little guy questioned his speech appointment, and it wasn’t so much the appointment, but exactly what did his speech pathologist do.
“She helps you speak easier,” I answered,…and then I asked the question, I had never asked, “Is it hard for you to speak,…or easy.”
That little head tip to the side for a moment, the little brow furrowed, and then he looked up, and said, “Hard.”
Poignant moment for like two seconds, as I inwardly gasped, “He knows!” because our little guy totally shrugged it off as non-relevant. It’s hard for him to speak, so what, he also has hazel eyes, both are a part of him, and as I.I. would say, “Next.”
Perhaps it is Autism that gives our little guy such self-acceptance,…or perhaps, more likely it’s his faith.
Oh yes,…eight year olds have faith,…amazing faith.
He knows,…he is loved.
He knows,…he is accepted.
He knows,…God doesn’t make mistakes.
He knows,…God helps him with his challenges.
He knows,…he is awesome,…and guess what our little guy thinks,…YOU are awesome, too.
Trust me for someone with a speech disability our little guy is a GREAT communicator. I certainly look upon the challenges in my life with a different perspective. Life’s messy, no one gets out of it without challenges,…some obvious, some not so obvious,…and those challenges and how we face them, and help others face theirs is the real question.
Our little guy knows that God will never leave nor forsake him,…he also somehow knows with his amazing little faith that 2 Corinthians 12:9 – holds true, today, tomorrow, and forever more.
“My grace is sufficient for you,
for my power is made perfect in weakness.”